The following organizations and resources provide reliable, patient-centered information on movement disorders, Deep Brain Stimulation, and related treatments. These are widely recognized, medically accurate, and useful for patients and families seeking additional education and support.
General DBS and Neuromodulation
-
International Parkinson and Movement Disorder Societyhttps://www.movementdisorders.org
Educational materials and global expertise in movement disorders.
-
National Institute of Neurological Disorders and Stroke (NINDS)https://www.ninds.nih.gov
Trusted government resource with detailed information on DBS and neurologic conditions.
-
MedlinePlus (NIH)https://medlineplus.gov
Easy-to-understand medical information for patients and families.
Parkinson’s Disease
-
Parkinson’s Foundationhttps://www.parkinson.org
Comprehensive patient guides, educational videos, and support resources.
-
Michael J. Fox Foundation for Parkinson’s Researchhttps://www.michaeljfox.org
Research-focused organization with excellent patient-friendly educational content.
-
American Parkinson Disease Association (APDA)https://www.apdaparkinson.org
Support programs, education, and community resources.
Essential Tremor
-
International Essential Tremor Foundation (IETF)https://essentialtremor.org
One of the most focused and helpful patient resources for tremor.
Dystonia
-
Dystonia Medical Research Foundation (DMRF)https://dystonia-foundation.org
Education, research updates, and patient support resources.
General Neurology and Brain Health
-
American Academy of Neurology (AAN)https://www.aan.com
Professional organization with patient education materials.
-
Brain & Life Magazine (AAN)https://www.brainandlife.org
Patient-friendly articles on neurologic conditions and treatments.
Caregiver and Support Resources
-
Family Caregiver Alliancehttps://www.caregiver.org
Resources for caregivers supporting patients with chronic neurologic conditions.
-
National Alliance for Caregivinghttps://www.caregiving.org
Tools and education for family members and caregivers.
Clinical Trials and Research
-
ClinicalTrials.govhttps://clinicaltrials.gov
Searchable database of ongoing clinical trials, including DBS and neuromodulation studies.
How to Use These Resources
These links are intended to supplement—not replace—your discussions with your care team. Many patients find it helpful to review this information over time, especially when preparing for surgery or adjusting to life with DBS. If you come across questions or conflicting information, we encourage you to bring them to your appointments so we can review them together.
